The Roller Coaster of Lyme Disease!

Sunday, March 8, 2020 – 10:18AM …

As I type this, I am absolutely miserable. The last few days have been way worse than usual … symptoms have increased and intensified … headaches, neck pain, joint pain, nausea, loss of appetite, brain fog, anxiety, and debilitating fatigue (the kind where you feel like someone shot you with a tranquilizer). I keep telling myself, “You’ve been here before. You know what to do. Just ride the storm. This isn’t permanent. It’ll pass.”

Honestly … this gets so old! Lyme Disease is a roller coaster that I NEVER volunteered to be on and it won’t let me off!

Lyme Disease is a roller coaster that I NEVER volunteered to be on and it won’t let me off!

I loathe when I have a few decent days, and then plummet back down into the pit of misery. The few decent days always get my hopes up that I’m on the path to recovery, and then that hope eventually fades like a mirage in the desert. That’s what I mean by Lyme Disease being a roller coaster. It’s up and down. Recovery is not linear. If you have it, then you know what I’m talking about.

Yesterday I talked with a few of my Lyme friends about how I’m feeling. That always helps me. Bottling it up makes me irritable or anxious or depressed or all three of those. Many of my Lyme friends are also having a harder time than usual. My friend Jessica Donaldson believes it’s because of the “super moon” that is upon us.

I know that sounds cooky, but from my personal experience, I do believe there’s something to it. Over the last year, I’ve noticed that I typically feel worse during during a full moon or new moon.

But why? … What’s up with that?

Here’s one explanation that I came across that fits my situation …

Parasites. They are the main culprits for the flare-up. We may not like to think about it, but inside of our bodies, most of us have worms, unwanted parasites that we are not even aware of. If not addressed properly, a parasite infection can hinder the healing and it can even lead to other serious health problems. Around a full moon, not only the Lyme patients will feel worse, but also those who have parasites, because during this time, the parasites’ activity peaks, causing us, the host, to feel unwell. The parasites are active during the full moon too as it is their mating season. Every couple of weeks, the parasites and bacterias hatch and form new babies. To be more precise, the spirochetes have a reproductive cycle each 28-30 days, which coincides with the full moon cycle. The flare up is due to the fact that during this period of time the spirochetes are far more active. As for the co-infections, they have a 3 to 5 days cycle, which explains the ups and downs on the symptoms experienced by patients.

Source: https://a-zlyme.com/full-moon-and-lyme-disease/

On top of battling Lyme, I recently found out that I tested positive for SIBO (Small Intestinal Bacterial Overgrowth). Over the last 5 months that has been the main source of my excruciating left abdomen pain, increased headaches, increased brain fog, unusual looking diarrhea (I’ll spare you the pics), increased anxiety, loss of appetite, and major weight loss (30 pounds people).

To treat SIBO, I recently began taking two powerful homeopathic meds: Bacteria Tox and DysBiocide.

HOLY WATER BUFFALO! Dude, I ended up coming off of the Dysbiocide, because the combination was too much at once. It was causing some serious die-off (herx reaction). That … plus the super moon thing … I was praying for Jesus to come back immediately!

As I said at the beginning of this blog post, I am absolutely miserable right now, but trying to stay positive. It’s not easy during these times in the pit. For some guidance and encouragement in my battle with Lyme, I’ve been reading through the book, THE HEALER WITHIN by Holly Chameli. She has recovered from Chronic Lyme, Chronic Fatigue Syndrome, and Autoimmune Disease. Yesterday, I highlighted this quote because I TOTALLY relate …

A chronic and debilitating illness can feel like being buried alive. You do not technically have a terminal disease, but you feel like you are in the midst of dying every single day. The losses are many. Obviously, the pain of feeling sick every day is enormous, but so too is the sense of total loss when you can no longer be the parent you once were, maintain a career, socialize with friends and family, or simply grocery shop. Yes, you are living, but you may feel dead inside. Keeping your head above water during the healing process is certainly challenging, but you must stay positive. How do you do this?

THE HEALER WITHING by Holly Chameli – Page 141.

She then goes on to give advice on how to stay positive … that’s the chapter I’m into right now. So I’ll have to get back to you.

2:38pm …

At lunch time, I finally got my butt off the couch, took 4 Advil for my head and neck pain, and then drove to the pharmacy to pick up a prescription for my SIBO. After that, I ate a burrito bowl from Chipotle (white rice, chicken, a little bit of mild salsa, and guac). About 30 minutes later, I began to feel some improvement.

Thank You, God

I went to Walmart and picked up a few needed items, and then hit Starbucks for a small coffee. Then I came home, cleaned up the kitchen, and vacuumed the house. Now I’m finishing up this blog post, then I’m going for a short walk in the neighborhood to soak up some sun. My brain fog has even cleared up. Again, thank You, God! I have been praying all day for some much needed relief. Not sure how long this will last.

Hang in there my Lyme friends. You are NOT alone in this battle. I know it is EXTREMELY difficult. I know there are days when you feel like you are going to have a complete breakdown or worse. Again, you are NOT alone. I encourage you to reach out to other Lyme friends or a Lyme Support Group or a Lyme Counselor/Therapist. I also encourage you to keep crying out to God and seek Him by reading the Bible. Lately, I keep meditating on Psalm 103 and praying through it. Check it out. It’s a good one.

Battling with you,

Jason

On Friday night, my wife and I went out on a long-overdue date. As you can probably tell from the pic, I was not feeling well, but did my best to focus on her.

Chronic Lyme Disease – 13 Things That Help Me Feel Better!

This past week was definitely a better week for me than the week before. Yes, my symptoms were still there, but they weren’t as intense. I was actually able to work on a paint job for 5 days. That is a tremendous answer to prayer. No, it was not a pain-free 5 days, but it was better than usual.

So what’s helping me feel better? …

1Diet/Nutrition … I’ve been maintaining a strict/healthy diet and that means less inflammation/pain. I avoid sugar, gluten, and dairy. I’ve also been avoiding fried foods, artificial sweeteners, vegetable oils, beans, and alcohol. I eat as organic as I possibly can. If I eat sugar, it’s less than 12g.

2Sleep … I’ve been consistently going to bed at a decent hour to make sure I’m getting plenty of uninterrupted sleep. Last night I was in bed at 9pm (on a Saturday night). I don’t even care. For me to have uninterrupted sleep, I sometimes have to sleep in the guest bedroom. I hate doing that as a married man, but uninterrupted sleep is absolutely vital to my health and ability to work my job which enable me to make money for my family’s needs and wants.

3Supplements … I’ve been extremely consistent with taking my vitamins, supplements, and meds. I take many of them 2 to 3 times per day … Vitamin C, Magnesium, Turmeric Curcumin, Vitamin D, Vitamin B-12, Omega 3 Fish Oil, Cordyceps, Ashwaganda, Lithium Synergy, 5-HTP, GABA, Cat’s Claw, Burbur Pinella, Resveratrol, L-Glutathione, Chlorella, Real NAD Plus, Feverview, and CoQ10.

4Hydrate … I literally drink about a gallon of water per day (Spring Water or Filtered or Alkaline).

5Avoiding Stress/Conflict … That means I avoid certain people, conversations, debates, arguments, etc. Even on social media. Especially on social media. You can have it. As for me, “Ain’t nobody got time for dat!”

6 Prayer … Every morning and throughout my day I’m constantly calling on God for healing, strength, energy, clarity of mind, peace, etc. Mornings are typically the roughest part of my day, and I often feel like there’s NO WAY I can possibly make it through my work day. Honestly, most people wouldn’t even go to work feeling the way that I do. I cling to Philippians 4:13 … “I can do all things through Christ who strengthens me.”

7Talk Therapy … I’ve recently talked with two different therapists/counselors who have personally battled Lyme Disease. They’re way further along the road to healing than I am. I also regularly talk with and listen to friends who are battling Lyme Disease. It really helps. Bottling things up and trying to face it on my own was making me feel much worse. Don’t isolate. Don’t bottle up.

8Frequent Breaks … I take extended lunch breaks to rest in my work truck after I eat lunch (a benefit of owning my own company). When I get home from work in the evening, I also lay on the floor for 30-minutes and allow my two dogs (Remi and Ruger) to sniff and lick all over me … then they typically nestle up beside me. I love it and need it.

9Bind and Detox … Several times a week I take Activated Charcoal tablets to bind-up toxins … and I also do hot epsom salt baths … and at least once per week, I go to the local spa for a 30-minute session in the infrared sauna.

10Don’t Overdo It … I push myself, but not too much … I’m learning to listen to my body and know my limits with this disease so I don’t overdo it. Like the other day … I was at work and I really wanted to finish an area that I was painting, but I could feel my brain fog coming on strong with a frontal headache. My lower left abdomen pain also began to increase. I knew right then and there it was time to clean-up, pack-up, and call it a day. My body was saying, “Enough! Time to rest!”

11Keep Learning … I’m constantly reading books, articles, and blogs … or listening to podcasts or audio books … that help me improve/heal physically, mentally, emotionally, and spiritually! Today I began reading The Healer Within by Holly Chameli. She’s recovered from Chronic Lyme, CFS, and Autuimmune Disease. Her story is inspiring me and giving me hope.

12Have a Yoda … I pay big bucks out of pocket (insurance won’t cover a dime) to see a top Lyme Disease Specialist who listens to me, runs various tests on me, advises me, and prescribes various holistic/naturopathic treatments that help heal me. His name is Greg Lee and he’s with the Lyme Research and Healing Center in Frederick, MD.

13Move … You have to keep physically active. That looks different for all of us depending upon what stage we’re at in the healing journey. If all you can do is walk out to your mailbox and walk back, do it. Then the next week, walk to your neighbor’s mailbox. Do some sort of physical activity and keep increasing it week by week, but don’t overdo it. There will be some days (or weeks) where you’re flaring-up or having a bad herx reaction, and all you need to do is rest/sleep/recover. Dude, I get it. Been there. Done that. Got the T-Shirt!

As I said, this past week was definitely a better week for me, but I realize that tomorrow I could wake-up and experience a major relapse. That’s how it goes sometimes. Nevertheless, I will continue to keep doing these 13 things in my battle to heal.

Battling With You,

Jason

Today my daughter Gabrielle and I took Remi to a local park to play and then we went to Starbucks for a treat. Watching her laugh at Remi while he lapped-up a pupacino was therapeutic.

Jason T. George is not a medical professional. The content of BattlingLyme.com is for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, and treatment. Always seek the advice of your physician or other qualified health provider with any questions or concerns you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read, seen, or heard from Jason T. George.