My Backstory with Lyme – Part 3

So as I said in my last post, after my Primary Care Physician decided that I didn’t actually have Lyme Disease because I didn’t “technically” meet the CDC’s standards (CDC = Center for Disease Control), she referred me to a Neurologist and also wanted me to have a sleep study done. The sleep study sounded ridiculous to me so I never had it done, but I did make an appointment to see the Neurologist. I had to wait four months to meet with him. Crazy!

When I finally met with him, he asked me some basic questions about my symptoms and then did some basic testing of my strength, balance, focus, etc. Apparently I passed with flying colors. At that point, he didn’t really know what to do with me, so he suggested I get a CAT Scan done and go see an Infectious Disease Doctor. I thought to myself, “Wait, what? An Infectious Disease Doctor? So you think I might have an infectious disease?” This was all so confusing.

I was ready to schedule the appointment with the Infectious Disease Doctor, but a friend told me that it’s pointless to see him because he doesn’t even believe that late-stage or “chronic” Lyme Disease is a real thing. She said he wouldn’t even consider that as a possible diagnosis. I didn’t know what to do. I began second guessing myself, “Maybe I don’t have Lyme Disease? Maybe I have something else going on? But why was my ELISA Test positive and why did I have four out of ten positive markers on my Western Blot Test? What the heck?” Something didn’t seem right to me. It was time for me to do some serious researching and networking to try and figure things out.

I talked to my friend Stephanie who had suffered through a long and difficult battle with Lyme Disease and she told me that many people who have Lyme Disease don’t meet the CDC’s requirements and that there are many “false-negatives” with Lyme testing. After talking with her, I decided to schedule an appointment with a doctor who helped her with her Lyme Disease. She told me that he specialized in treating patients with Lyme Disease and other tick-related infections. He’s what’s referred to as a “Lyme Literate Medical Doctor” or “LLMD.” Even though he’s a legit M.D. (Medical Doctor), he has to operate outside the medical establishment just because he believes that Late-Stage or “chronic” Lyme Disease is a real thing and he’s not afraid to treat it. I found out that’s a big NO-NO with the medical establishment. In fact, some doctors have actually lost their license over it.

I drove two hours to see this LLMD (Dr. Paul Beals at Chesapeake Wellness Center in Stevensville, MD). My first visit cost me $450. Unfortunately, my insurance wouldn’t cover a dime because the medical establishment doesn’t recognize “late-stage” or “chronic” Lyme Disease. I didn’t care! I desperately needed help. At that time, I was having increasing difficulty functioning with work, ministry, and just everyday life. All of the essential oils that Meagen and Stephanie sent me definitely helped reduce some of my symptoms, but they weren’t enough. I needed more.

Dr. Paul Beals doesn’t do small talk. I sat down in his office and he got right down to business. As he looked over the results from my Lyme Test and Blood Work, he began circling things and drawing lines. He then grilled me with a series of questions about my history of symptoms. He was furiously scribbling notes the entire time I talked. We talked for well over an hour. Contrary to my Primary Care Physician, he was absolutely convinced that ALL of my health issues were completely the result of not only Lyme Disease, but also co-infections like Bartonella and Babesia. I wanted to cry. Just to be fully heard and have a legitimate and confident diagnoses from a medical professional felt like coming out of a dark fog.

Dr. Beals immediately launched into a detailed scientific explanation of what Lyme Disease (Borrelia Burgdorferi) and the co-infections (Bartonella and Babesia) can do to a person if left untreated. All of it was new information … with terms like spirochetes, biofilms, biotoxins, stealth pathogens, neurotoxins, the blood-brain barrier, mycoplasma, Bell’s palsy, neuropathy, mitochondrial dysfunction, adrenal fatigue, Herxheimer reactions, detoxification, etc. It was OVERWHELMING! I took as many notes as I could, but it was just way too much for me to write down and comprehend in one meeting.

After that avalanche of scientific information buried me, Dr. Beals then began laying out my treatment plan. He gave me a prescription for antibiotics (Cefuroxime Axetil 500mg). He also told me I needed to completely change my diet by eating organic as much as I could and completely avoiding white processed sugar, dairy, gluten, and processed foods. He also told me that I needed to take a good multivitamin 3xs per day and take extra Vitamin C and Vitamin D. He also told me to take a good probiotic at lunch and bedtime (away from the time when I take my antibiotics). He also prescribed Trazadone and said it would help with my insomnia, stress, and anxiety. I immediately gave him pushback on the Trazadone. “I don’t want a med to help with my stress and anxiety. I’m already taking one.” He said he prescribes Trazadone for all of his Lyme patients and that it will totally end my insomnia … and then he told me how crucial sleep is to overcoming Lyme. He also assured me it was not habit forming and I could easily come off of it.

“Where have I heard that before?”

He insistent that I needed it and kept repeating that it was perfectly safe. Because he was a “Lyme Literate Medical Doctor,” I listened to him. I was desperate and willing to do whatever it takes to get rid of this #@$&@ disease and all the other nasty co-infections that came with it.

At the close of our meeting, he again mentioned this thing called a Herxheimer reaction that could result from taking the antibiotics. He said that when it happens, I would need to take Alka Seltzer Gold and drink lots of water. I had no idea what a “Herxheimer reaction” was. He really didn’t explain that very well, nor did he warn me of how horrible they can be, but I would soon find out! Fun. Fun. Fun.

Dr. Beals repeatedly told me that it takes Patience, Persistence, and Pills to overcome Lyme. Those were his three P’s … like he was some sort of Southern Baptist Pastor giving alliterated sermon points. I shook my head. Anyway … when Dr. Beals used the term “pills,” he was referring to antibiotics. I would soon find out that if one antibiotic didn’t do the job, he’d put you on a different one, and if that one didn’t do the job, he’d put you on a different one, and if that one didn’t do the job … you get the picture. He wouldn’t stop with the antibiotics! His primary approach to treating Lyme Disease and co-infections was with hardcore antibiotics.

He also warned me that there’s no quick-fix or easy cure to treating Lyme Disease and co-infections. I was like, “What do you mean? How long we talking Doc? A month? Two months? I got stuff I need to do with my life, family, business, and ministry!” He told me it could take years. My jaw hit the floor … “You’ve got to be kidding!”

He wasn’t kidding.

I didn’t like his answer (not at all). However, I left his office feeling quite optimistic and hopeful. “Bring on the antibiotics! I got this!”

Dude, I had no idea what I was in for! My arrogant @$$ was about to be humbled, broken, transformed like never before!

I’ll share more about my backstory with Lyme Disease as soon as I can. I only write when I feel well enough to. Unfortunately, this summer has been extremely hard for me. I’ve had a major setback in my recovery/healing. On top of all of the “normal issues” that I’ve been working so hard to heal, I found out this week that I may also have parasites. I’m not even kidding! The last two days have been ABSOLUTELY MISERABLE … I’m talking on the floor in a fetal position, moaning in pain! I’m going through all sorts of fun test this week (sarcasm). Tonight, I’m extremely thankful that I’m feeling well enough to write and finish this post. Thanks for taking time to read it.

If you’re battling Lyme Disease or some other chronic illness or disease, you’re not alone in your suffering. Don’t lose hope and don’t give up! This was my prayer this morning …

“But You, O Lord, do not be far off! O You, my help, come quickly to my aid!” – Psalm 22:19 ESV

Battling with you,

Jason

Me and my youngest daughter Gabrielle on a dinner date!

I’m not a medical professional. The content of BattlingLyme.com is for informational purposes only. The content is not intended to substitute for professional medical advice, diagnosis, and treatment. Always seek the advice of your physician or other qualified health provider with any questions or concerns you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on BattlingLyme.com