It’s been a while since I’ve blogged about my Lyme battle, and today is a good day to do that. I’m at home, trying to finish-up some bookkeeping and filing for my business, but that’s not going so well because this morning I feel like a Mac truck ran me over. Right now it’s difficult for me to do anything productive. Even thinking hurts. I’m experiencing wave after wave of head pressure, nausea, brain fog, fatigue, chest pain, back pain, shoulder pain, arm pain, and that nasty flu-like YUCK feeling. I probably left something out. It’s just not a good day.
It’s incredibly frustrating to me because a few weeks ago I was doing so much better …
On March 12, I went back to see my Lyme Specialist, Greg Lee at The Lyme Research and Healing Center in Frederick, MD. We did about four hours of scans/tests, and the results indicated that I have an infection in my spinal fluid and it’s causing inflammation … looks like parasites (specifically Tapeworms). I also have other “issues” going on but that was the big one that needs immediate attention.
After the scan/testing, we did some acupuncture, cupping, and hydrogen therapy. Then Greg laid out a whole new treatment protocol of herbal remedies, supplements, and essential oils. All of this was extremely costly (around $2k … and of course, insurance didn’t cover a dime). It’s hard for me to spend that kind of money on myself, but I really had no choice. I wasn’t making any real progress self-treating and I have to get healthy for my family, friends, work, ministry, etc.
What price do you put on your personal health?
After beginning the new protocol back in mid March, I actually began feeling major improvements in my overall health. I was thrilled! I thought to myself, “Finally, something is working! Thank You God!” My wife and kids even noticed a difference in me and some of my friends began telling me how much healthier I looked.
I enjoyed two of the best weeks I’ve had in well over a year … less brain fog, nausea, intestinal pain, headaches, joint pains, facial twitching, anxiety, etc. I was totally feeling more like my “normal self.” It was awesome … and then … WHAM! … I got knocked down (again)!
Over the last two weeks, I’ve been experiencing some sort of major flare-up. It’s bad … and I have no idea what I’ve done done to trigger this. The last several days have especially been bad. I talked with some friends who’ve battled late-stage Lyme Disease much longer than me, and they told me that what I’m experiencing is totally normal when you’re on the road to recovery. I guess that’s good news, but not very comforting when you feel like death is at the door.
It’s a hellacious battle to stay positive and hopeful when suffering with various chronic issues/pain. This morning I made myself get out of the house and go for a two-mile walk in my neighborhood. I prayed as I walked. The warm sun felt good. If I didn’t have God in my life and a few good friends, I don’t know where I’d be. It would NOT be a good place. Many times you feel so utterly alone in this battle with late-stage Lyme Disease and chronic pain. The worst thing you can do is bottle it all up and isolate. God and good friends are crucial.
So yes, once again, I’ve been knocked down, but I’m not knocked out. I will rise … and I will press on … doing whatever it takes to heal my body from this monster.
You have to do the same. Remember, it’s always too soon to give up. Lean hard on God and a few good friends. Reach out to a professional therapist if you need to. Don’t bottle it up and isolate.
Battling with you,